Online Support Groups
There are several excellent online communities, and it can be very comforting to find one with other parents going through the same thing you are. In some cases, you can actually connect with caregivers experiencing the same diagnosis, allowing you to ask specific questions about test results, doctor referrals and more. Be advised that nothing you hear online should ever replace the information you receive from your child’s doctor. However, establishing relationships with others in similar circumstances can do a great deal to relieve anxiety for many caregivers.
ACOR (Association of Cancer Online Resources) - offers information and support through its integrated system of online discussion groups. Although the registration process is slightly complex, it’s worth the effort. The disease-specific discussion groups are extemely valuable. Diane Moore, Striving for More's founder, was actively involved in ACOR’s osteosarcoma discussion group, which has hundreds of active members. Imagine being able to actively engage in discussion with hundreds of other parents whose children have the same diagnosis as your own child! Another advantage: since the groups are disease-specific, leading oncologists actively participate in some of these discussions.
Candlelighters Childhood Cancer Support Group - connects patients, families, friends and caregivers for support and inspiration. The Candlelighters Childhood Cancer Support Group is sponsored by the Candlelighters Childhood Cancer Foundation in partnership with Inspire.
CancerCare Online Support Groups - Although not very specific, these support groups are moderated by clinical oncology social workers, who raise their level of credibility and professionalism. Currently, the following groups pertain to our clients:
- Caregiver Group: Parents of a Child with Cancer
- Grief Group: People Who Have Lost a Loved One
- Grief Group: Parents Who Lost a Child to Cancer